Cluster migraines are quite possibly the worst type of migraines for someone to experience.?? They are also the most rare, only occurring in a few sufferers out of the millions.?? Typically for every 7 people that suffer from cluster migraines, 6 of them will be women.?? Cluster migraines were named as such because they occur in clusters that will last for several days, occur many times in a day, and are more painful than any other type of migraine.
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The exact cause of cluster migraines is still not known, and therefore treatments have not been exact.?? There is, however, a suspected link between magnesium and cluster migraines.?? Information found by scientific studies has led to the belief that magnesium can provide some relief in the intensity of pain that is experienced during an episode and in some cases it has the potential to reduce the number of episodes experienced.
Although there will need to be more studies performed to provide more definitive results, the ones that have already been done have showed some helpful information.?? These studies showed that among all of the different types of migraines, the people with cluster migraines had the lowest levels of magnesium in their systems.?? For those who were given magnesium to treat their cluster migraines, the results showed that magnesium was indeed an effective treatment.
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Modern medicine still has yet to catch up with the study results.?? Most doctors have no idea about these studies and how magnesium affects people who suffer from cluster migraines.?? You will most likely need to discuss the issue with your doctor and present any information that you have on the topic.
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Our Readers' Questions
How can I achieve severe migraine relief after trying so many medication combos?
brksmith asked on Fri, 02 Mar, 2007
I have at least 2-3 severe migraines a week. Over the past 3-4 years they have continuously increased in frequency and severity. I have been on numerous combinations of medications to stop and prevent the pain with no relief. At my neurologist's request I have even tried Botox. I was hospitalized for 5 days in November with a Dihydroergotamine (DHE)(migraine med) and Reglan(antinausea med) IV hooked up to me. I'm tired of taking meds that don't work and I don't want to start taking pain meds on a regular basis just to get through the day. My quality of life is next to nothing. A few weeks ago I had a day where I woke up before 7am on my own, I felt great and was full of energy up until around 8pm when my migraine cam back with vengence. I have become so accustomed to feeling bad that I wasn't aware of how bad until I had that day. I want my life back. What other alternatives may be out there to help me?
I've tried several low dose antidepressants, low dose blood pressure meds, low dose anti-seizure meds and other preventitives. I've tried Imitrex, maxalt, epidren, fioricet, DHE injections, Zomig as well as others for the migraines and they don't help. I was put on actual antidepressants before thinking it might help the situation and it made it worse. I became emotional and moody as a result. The low dose antidpressants were the same. Pain meds are a joke! I take them and they don't really touch the pain, just make me dopey if even that and that's only the first few times I take it then it doesn't work and I would need to take more each time to feel any effect. I refuse to go there. It seems to me that my body adjusts to any meds so quickly that it's not effective or I will have a reverse effect.
Kimm T replied on Fri, 02 Mar, 2007
You sound like me - You poor thing!!! I get them quite frequently as well. My doctor perscribed to me a blood thinner to me, it helps regulate the blood flow to my head. I don't remember the real name by the generic is Inderol... I think that is how you spell it. I have also tried ginsing, the herbal and that has helped me tremedously.
Good Luck, and feel better
Cammie replied on Sat, 03 Mar, 2007
You need to go to a headache center and find out exactly what kind of headaches you have and how to prevent them.
You are going to have to take daily meds if you want to get rid of this.You can't just wait till it hits and try and control it.
I hope you feel better soon.
Some Dude replied on Fri, 02 Mar, 2007
Have they checked your heart?
http://www.neurologyreviews.com/feb04/nr_feb04_foramen.html
Anelisa replied on Mon, 05 Mar, 2007
First I just want to say I am so sorry for your pain. I don't think anyone knows how much migraines can mess up your life unless you have them.
Mine started lightly when I was 8 years old. At 17 they got bad enough to start the testing/doctor/drug part of my life. Like you, nothing worked and they kept getting worse. At 21 I moved to Germany. After my bf watched me suffer 3-4 migraines a week for months, he made me go to a homeopathic doctor. In Europe homeopathy is thought of as well as western medicine. Let me tell you IT WORKED!!! I was very skeptical, in the US we are taught that homeopathy is a bunch of herbs and silliness. It really is about finding the root of the problem instead of treating the symptoms. I now only get a migraine when I get sick and my body is tired from fighting. Please look into this. If you find a REAL homeopathic doctor who knows their stuff, I promise your life will change as mine did. I got my life back, I hope you get yours too.
KTMamma replied on Fri, 02 Mar, 2007
Hello- migraine sufferer here and I can't tell you how much I can relate to you!
I JUST tried taking B complex vitamins and I really think they are helping take away the amount and severity of the migraines. Here'd a link explaining how these vitamins and nutrients may just help us:
http://bastyrcenter.org/content/view/437/
And... I attached the paragraphs of another link here explaining B vitamins and more-- (riboflavin, magnesium, etc)
Vitamin B6
Vitamin B6 (Pyridoxine) is involved in the production of the neurotransmitters dopamine, serotonin and histamine. B6 works to prevent and treat migraines because of its role in histamine function. The activity of the enzyme diamine oxidase breaks down histamine in the lining of the small intestine before it is absorbed into the circulation. Individuals sensitive to dietary histamine have about one-half as much diamine oxidase in their tissues. Diamine oxidase is a vitamin B6 dependent enzyme. Therefore compounds that inhibit B6 also inhibit the production of diamine oxidase.
Food coloring agents like FD&C yellow #5, birth control pills, alcohol, and excessive protein intake are some of the things that inhibit B6 production. Most people take in more B6 blockers than B6 itself. B6 supplementation has been shown to relieve histamine-induced headaches presumably by increasing diamine oxidase activity. Vitamin B6 works with magnesium in many enzyme systems and assists in the body’s accumulation of magnesium.
Vitamin B2
Migraine headaches have also been linked to a reduction of energy production in the blood vessels of the brain. B2 (Riboflavin) is water soluble and essential to tissue respiration and generation of energy metabolism from carbohydrates, proteins, and fats. Recent studies show that it is helpful in the treatment of migraines. Migraines can also occur because of a reduction of energy in the mitochondria and B2 can help increase energy production and efficiency in this area. B2 is also vital to the conversion of tryptophan to B3.
I hope this doesn't seem like a lot of info all in one shot- I, myself am just trying to be hopeful that this new "med" I am taking will continue to ease and hopefully prevent these terrible migraines.
Wishing you a remedy that will work for you-
Kate
LI SAHM (Long Island Stay at Home Mom)
moosviews4u replied on Fri, 02 Mar, 2007
Try going to a chiropractor! The Dr. I used to work for solved many people's migraine symptoms. One woman had migraines for 25 years, and after a few treatments they are gone and have stayed gone. Beats the heck outta taking all those medications.
Stewness replied on Fri, 02 Mar, 2007
Geez. Sorry to hear about the severity and frequency >,< If the legal pres. don't work I can attest that THC provides substantial relief, at least in my experiences with migraines, not nearly as common as yours. Not a recommendation to go that route *cough*, simply providing alternative suggestion ;)
Good luck man
elanabutcher replied on Fri, 02 Mar, 2007
This may be a last resort. But the alternative way I have tried is to soak both feet in icy cold water at home for as long as you can. It has worked for me. Try it.
Maggie K replied on Fri, 02 Mar, 2007
I'm so sorry you've been dealing with all this. I, too, deal with crippling migraines. I've tried about all the medicines you've tried. Most recently I went to a pain medicine anesthesiologist who gave me an occipital nerve block and trigger point injection. It seems to help, and I'm going back to have another one. A pain medicine doctor might really be able to help you.
I tried chiropractics but it only made my headaches worse (I tried two different practitioners). However, acupuncture has been a LIFESAVER! I go often enough to get my migraines under control, then I taper down on how often I go. If you went to a traditional chinese acupuncturist they would be able to give you herbs as well. Some physicians and chiropractors practice acupuncture, but their training is not as long and I wouldn't recommend it (and I'm a physician myself!).
Best of luck. Please find a good neurologist who specializes in headaches -- you'll most likely find one at a big University medical center.
Doc replied on Fri, 02 Mar, 2007
I have to tell you, in my 23 + years of practicing medicine, the majority of the diagnosed migraines I saw were not. They were typically muscular tension and on the odd occasion, I'd see a cluster. This is to say, that most physicians don't REALLY understand head aches and tend to misdiagnose them if for no other reason than to satisfy the patient. Try keeping a journal to determine precursers and possible contributing factors.
iraq51 replied on Fri, 02 Mar, 2007
I have been having migraines for the past 20 years...but not as severe as yours. I too ran the gambit of medications you describe. Each time a new one came out my doctor wanted me to try it. He even put me on Vicoden and then Percocet with no real relief. The only medication that works for me...and I still use it... is a combination analgesic called Fiorinal with codeine. I see where you have tried Fioricet. I too use Fiorinal and Fioricet as a single analgesic without success. But the combination of butalbital& codeine was very successful in aborting the migraines.
Sorry, but that's the only thing I can suggest. Oh, and I did tried a chiropractor with absolutely no success.
Keko replied on Sun, 04 Mar, 2007
Much pain is from muscles below is an example of what may help (based on headaches).
Begin with a couple swigs of molasses or a couple of bananas daily - magnesium (which regulates many things in the body) and potassium (a needed building block for muscles).
Drink at least 1/2 gallons of water per day. Running a body low on water is like running a car low on oil is the analogy the head of neurology at UCDavis told my husband about 10 years ago.
Now to the cause - muscles - your back, neck shoulders and head have tender spots. They are knots in the fibers of the muscles called trigger points. It makes the muscles tight which makes them press on nerves and other things causing the pain.
The cure - start with a professional massage, you will also want to go back over any place you can get to 6-12 times per session up to 6 times per day rubbing (or lightly scratching on your head) every where that is tender until the knots go away. The place where the skull connects to the spine press up under the edge of the skull (to get to those muscles).
For more information read The Trigger Point Therapy Workbook by Davies. It teaches what to do and where the pain comes from.
tata347 replied on Fri, 02 Mar, 2007
Obviously you have been unable to determine the root of your migraines. I used to get them every Monday & thursday morning, until it was pointed out; I was dancing and eating cookies after 9 pm. Try keeping a journal to determine any common trends in case you already haven't. Then find yourself a good chiropractor, that was the ONLY thing that finally made mine go away. I see him now 3 or 4 times a year for a "tune up" (more if I've done something I shouldn't) and no longer have debilitating migranes & a safe job.
Kat replied on Fri, 02 Mar, 2007
You don't say what combos of meds you have been on. Alot of stuff gives rebound headaches that are as bad as the migraine. You need a new neurologist . Having request you get Botox what an idiot. Have you tried any preventive meds to take before bed like Topomax? I used to use it and helped plus watching everything I ate. I still get migraines but not as bad as when I was taking all the crap for them, You may need to try a anti-depressant to keep you from silently stressing over these, people who have never had a migraine have no clue what they do to us. I wish I had better advice. Just know you aren't alone
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